mousme: A view of a woman's legs from behind, wearing knee-high rainbow socks. The rest of the picture is black and white. (Heal Emru)
One year ago today Emru Townsend passed away.

You can STILL make a difference, still honour his memory, by registering to donate bone marrow. Educate yourselves, educate your friends.

1. 70% of people requiring a stem cell transplant need an unrelated donor.
The first choice is a family member, but more people will have to rely on a stranger.


2. Register by providing a blood sample in Quebec or the UK, or a cheek swab sample in the rest of Canada or the US.
In the US, UK and most of Canada, you can even fill in your registration online and get a kit sent to your home.
This is a free service in many countries, and in the US, there are ways to register for free.


3. Donation is safe, fast, and not risky.
You never donate stem cells or bone marrow at risk to your own life. Whatever is donated replenishes itself naturally in the body.


4. There are 2 ways to do it.
70% of people will donate in a process that takes a few hours and is similar to donating blood. For a few days leading up to the extraction process, the donor receives injections to produce additional stem cells in the body.

30% of people will donate by having liquid marrow extracted from within the back of the pelvic bone.


5. Many people cannot find matches.
Giving blood is important, and people who need transplants (in addition to many other people) need blood to survive. There are 8 blood types, but several million combinations of possible human leukocyte antigen (HLA) profiles - 150 billion different possibilities in theory.

Where to go for more information:

http://www.onematch.ca OneMatch (Canada) free
http://www.hema-quebec.qc.ca Hema-Quebec (Quebec) free

http://www.marrow.org National Marrow Donor Program (US) free in person if you are in a minority donor pool, subsidized or free at some bone marrow drives, free online registration with promo code
http://www.dkmsamericas.org DKMS Americas (US) Find out how to register without leaving home for free or by paying what you can
http://www.anthonynolan.org.uk Anthony Nolan Trust (UK) free
mousme: A view of a woman's legs from behind, wearing knee-high rainbow socks. The rest of the picture is black and white. (Heal Emru)
You know, I'm more than a little shocked by these numbers, posted by [livejournal.com profile] kino_kid. There's got to be a better way to encourage people of all ethnic backgrounds to register to donate bone marrow.


It's doubtless that more people know about stem cell donation now and also learned that the most likely match is someone of the same or a similar ethnicity. But many people still aren't aware. It's just that these things take time.

Many people also think that hundreds and even thousands came forward in the Canadian black community to register when they heard of Emru's need and that of others. Before you read onward I want you to figure out a realistic number of people who came forward in Quebec and Canada in the Black community since February 1 and write it down on a piece of paper. Now keep reading.

First some population statistics:

Black people in Canada
approximately 800 000

Black people in Quebec alone
approximately 200 000

Black people in the greater Toronto area alone
approximately 345 000

This data was received on November 12th, 2008, directly from OneMatch and Hema Quebec. Here are the numbers from when we started this appeal, February 2008, and at the end of October 2008.

NOTE: I overreported this number as being 1633 black potential donors in Canada as of March 31, and I am taking steps to address this. It would help if OneMatch or Hema Quebec made the simple effort to publish more solid numbers on their website.

Black people who should be on the registry to create high rate of matching
approximately 80 000

Black registrants in Canada on Feb 1, 2008
1094*

Black registrants in Canada in October 2008
1226

New black registrants in Canada between February and October
132

Black registrants in Quebec on Feb 1
Less than 10

New black registrants in Quebec between February and October
24

[livejournal.com profile] kino_kid also says:

Tell me what you really think, as long as it's constructive. Because if you sincerely believe that statement you are right and part of the problem. If you don't believe it, you are right and can make a real change.

The people who registered, or tried and found out they were ineligible have my eternal gratitude. Those who spread the word are equally important. You have my thanks.

But we must consider how we are going to operate in the long term... and keep going.

Create your own note and cut and paste this information if you want others to know. You can also blog about it or discuss it face-to-face with someone you know.
mousme: A view of a woman's legs from behind, wearing knee-high rainbow socks. The rest of the picture is black and white. (Pooh on stairs)
It's Saturday, but I keep thinking it's Sunday. That would be Not Good, as I'm meant to be out of town tomorrow, so I'd be really late. ;)

I slept in today. Slept in properly until 10:00, and have been puttering around. I am getting spoiled beyond measure.

I have laundry to do today. Bleah. I still don't enjoy laundry. Maybe that'll change. I know that the rest of the household chores aren't as bad anymore, for some reason. Maybe 'cause I don't have to wash floors anymore.

Going to Emru's memorial later today. It ought to be nice, I think. So many people loved and admired him, it can't be anything but a beautiful memorial. I still don't have the words to express what I really want to say about this whole situation. I doubt I ever will.
mousme: A view of a woman's legs from behind, wearing knee-high rainbow socks. The rest of the picture is black and white. (Candle)
Emru Townsend passed away just before 22:00 today.

He will be missed by everyone whose lives he touched, no matter how briefly and how indirectly.
mousme: A view of a woman's legs from behind, wearing knee-high rainbow socks. The rest of the picture is black and white. (Valar Morghulis)
It's been a hard week for everyone, it seems. Found out that someone dear to many of my friends is very likely going to pass away sometime in the next couple of days. It's weird, because I barely know him, but I know so many people who love him so very much that I feel as though I'm losing a friend too.

I've said it elsewhere, but I'm going to say again just how unfair this seems. I know that life isn't fair, but every now and then it would be nice if miracles did happen to those who deserve them, especially this man and his family, who fought so long and so hard and touched so many lives with their struggle. There are levels of unfair in this world, and if this doesn't qualify for the top level, then it's certainly in the top three.

I never got to know this man, except indirectly, in this past year. I met him a couple of times, and thought how lovely he was. I was looking forward eventually to getting to know him better. I honestly thought there would be time. Every time someone dies, there's a terrible feeling of regret among those who knew them, for all the missed opportunities, for everything we took for granted, like the amount of time we have.

The only thing I can do now is to carry on the legacy that he and his family have begun. I can make sure that, no matter what, this will make a difference in the lives of others.

I just wish it didn't feel like so little.

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